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Welcome to the Lesch-Nyhan web site! This is a multipurpose site for parents, patients, teachers, doctors, researchers, and students.
Parents can get information on genetic testing and medical care. They can learn about adaptive equipment and exchange handyman suggestions Doctors can find medical information and other areas of interest. Researchers can make contact with research subjects and participate in the research forum and essay.
Students can get help with basic information and research projects. There is a glossary, a bibliography, and help finding Internet library sites.
Everyone can participate in the Forum. Topics include "Caregiver exchange", "Diet for Behavior and Health", and others. . Parents in particular are encouraged to use the forum. Parents can network and keep up with the latest issues and thinking in LND.
We provide a patient "refrigerator door" where patients can submit artwork, photos and written material. There is also an E-mail "pen pal" service which helps patients meet other patients with Lesch-Nyhan Disease.
Comments, suggestion and submissions are encouraged. (E-mail us)
The information in this site has been prepared by L.T. Anderson, PhD.
Comments, suggestions, and submissions are encouraged. Volunteers to help with the maintenance of this site are encouraged and appreciated.
The LND Registry would like to thank the following individuals
and corporations for their generous support:
Barbara & Robert Eber-Schmid
Trees NY
David Wasserman